Thursday, July 05, 2007
Back to Blogging
Yup I know I have said it before and I'll say it again now - I am back to blogging.
Lots going on - mostly medical and family stuff.
Everyone here is good. The boys are enjoying the summer even though I am already looking forward to their days back in school! They have been hanging out, playing games, watching TV, swimming, and playing outside. School starts late this year for them – August 20th, so we have a while to go yet.
We had an awesome time in Georgia last month on vacation which we all really needed and thoroughly enjoyed. The cabin we rented in the Blue Ridge Mountains was great and the kids had lots of fun playing in the creek and hiking the trails. It was gorgeous there and hard to leave.
Alex is gearing up to go to Voluntary PreK this year so he will also be going to “school” in August. Nick will be going into 4th grade and Jacob into 1st. Jake is still seeing the behavioral therapist at our home for the summer. His therapist, Michelle, does a great job with him and he loves when she comes. So do the other boys because she brings things for them to do and play with as well. When school starts he will resume having speech and OT as well. One of the downsides of therapies are their cost to us so he is only able to have Michelle for now.
Matthew turned one in May! He has been busy with doctors these days. He continues to be moitored for the hole in his heart (VSD) but has had some other small issues come up too. Matthew was sent to a Hematologist/Oncologist regarding his low white blood cell count and was tested for all kinds of blood disorders and tons of related diseases from Lupus to Leukemia. Fortunately he has none of those things, but due to his heart condition he is going to be continuously monitored. Every time he has a temperature of 100.4 or greater we have to call the Hematologist to see if he needs IV antibiotics at the Children’s Hospital. Recently Matthew had a slight fever one morning and then after his nap he was at 101.5 so I had to call into the hematologist. So I did and they told me he needed to go to the children’s hospital – he could have a viral infection or a bacterial infection. With either infection and his low white blood cell count they wanted to give him IV antibiotics so he didn’t wind up with something like pneumonia. So I called Adam and he met me at the hospital. They checked Matthew over and did a CBC on him only to find that his white cell count was actually higher right then than it had been since his birth! Just shy of 1500 (1500 being normal) so they monitored him for a while and let him go home since there were no signs of anything bacterial to mess with his heart. Very scary but the outcome was good. We are hoping that those kind of things do not happen too often, but we will be following up with his pediatrician at his next visit now before he has to go back to the hematologist again.
He got to see the cardiologist recently also for his EKG, Echocardiogram, and Chest Xray and checkup. That all went okay. His doctor was happy with the results saying that Matthew’s heart is looking okay and not looking like it is causing him any kind of issues. The tissue around the hole is trying to repair itself and will hopefully close the hole on its own eventually. His one concern was that Matthew’s heart is larger than normal size and the hole in his heart is still a large enough size, so if in the next few years the hole does not close it will cause strain on his heart. The heart is already working overtime to make up for the hole and its size, so it could cause some “issues” later in his life when we may need to consider a surgery or something. So he will see Matthew again in 9 months to view any more progress and see how things look. His weight is finally within normal ranges which is great. So that is all of his medical issues at the moment!
Adam and I are busy as always between the boys and working, but things are going well here.
And that is our update for now!
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